Thursday, April 29, 2010

Complex Trauma and You

I am home for the afternoon because Teddy is suspended for threatening a teacher at school. He was going to "Rip her arm off and beat her head with it".  Interesting idea. Same threat he makes to his brother. He denies saying it. Pretty remarkable they could match his words exactly without ever hearing them. (sarcasm)He then decided to say the teacher had physically assaulted him. This all happened yesterday but was turned into the office after school and so went down today. He did not mention it last night or this morning.  He also said his dad would see the teacher was fired.  Would this be the same dad he falsely accuses whenever he is angry? Probably not going to work out the way he wants. Such fear.

I went to the Therapeutic Parenting conference led by ATTACh last Saturday. It was amazing.  The first session was led by Jacquelyn Meyer whom I love. Jackie is the director of the Counseling and Enrichment Center in O'Neill NE and Building Blocks. She started calling me "My Brenda" which made me hers forever. 

Jackies' session was called Loss: The Hidden Trauma.  He discussed the grief cycle: shock & denial, bargaining, anger, acceptance, and explicit memory (Memories of specific incidents).  She then talked about implicit memory which is everything that has ever happened that has been stored in our brain. These effect our behavior even if they are things we cannot remember from infancy.

She then discssed the different players involved in a child's life: biological mom, adoptive parents, adoptive parent's extended family.  ALL ARE GRIEVING. The biological mom is grieving the loss of a child, the loss of self-esteem, loss of control in her life.  The adoptive mom is grieving what she hoped motherhood would be like, her value as a person who cannot have children (if that is involved), and shame over inability to have children, her new child's behavior and loss of family and friends who do not support the adoption.  The extended family grieve the loss of the grandchild as they hoped he or she would be, the fear their child may not be a good parent, are sad if they cannot spend time with the child safely.

The adopted child lost pets, their stuff, friends, school, their neighborhood, their family and they feel great shame that it may all be their fault, or that they are not worthy of those things.

What happens when yo put all these people together?  I think you can play out the scenarios most of which are not happy.

What can we learn from this?
Our physical presence with an encouraging touch and/or word can change lives forever. This is where blogs, conferences, therapists, and email listserves come into play. Mom's need the love and encouragement too. I hope you see it out. Our kids need it too and should not have to try to earn it. It is a basic human need to be loved and touched.

Thanks Jackie for a GREAT session!

Tuesday, April 27, 2010

The Perfect Mom

"But he said to me, 'My grace is sufficient for you, for my power is made perfect in weakness.' Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong." 2 Corinthians 12:9-10 (NIV)

Our society promotes excelling in all things. Kids who excell in sports, music, academics, behavior. Moms who are on every committee at school, are in every church function and in charge of half of them, run a business,have spotless houses and manage it all with a smile.

Don't buy into it. God brought these children with broken hearts into our lives. It is ok to be weak and allow Him to work through those weaknesses. I give Him many opportunities.

Have a healing day!

Friday, April 23, 2010

A Day in a Traumtized Child's Life

I can only imagine what it feels like to be Teddy. He has formed the tinies bit of attachment but for the most apart lives in a state of fight flight and freeze   I'm going to go through a day of Teddy's life as I imagine he is thinking/feeling. I have been his mom for almost 12 years. He is now 17 years old, 18 soon.

Morning:

"As Teddy wakes up he wonders if anyone has been in the room during the night and messed with his stuff. He bets his younger brother was and wonders what he took. He imagines they are all out there hogging all the cereal and there will be hardly any left for him.  He lays back down as it feels safer in his bed and wishes he could just stay there. His room is the only safe place because he has prepared many sharp objects to protect himself in case of intruders. He checks his windows regularly for strangers outside.  Before he goes out for breakfast, he checks his wallet to see if it was moved or any contents are missing. He is sure he left it in a different spot last night so knows that someone was into it.

He comes out to breakfast and sees his mom, (me) who is the meanest woman he has ever known. And there are his siblings who only want to take his stuff and eat his food. He growls angry words such as "Get out of my way." to his brother and throws a dirty look at mom who says "Good morning Teddy." He answers with "I don't like this kind of cereal and you know it."

On his way to school his stress levels begin to raise. His siblings look at him in the car and he knows what they are thinking. They are planning to steal from him and he will be ready. He sees people in the cars around him and wonders if any of them are robbers. He is sure that guy was looking at him. He will be ready.

He pulls up at school ready for battle."


And so goes his day. How do we respond to this child who is angry? Remember that under the anger is fear or sadness. Address that instead. There are times with Teddy now where I can give no answer that helps. That doesn't mean he doesn't hear what I say.  As his parent, no matter how difficult he is, I have the responsibility to be a good loving parent, to set limits, give consequences, and pour out the love to this chld who tries so hard to be unlovable.

Never, never, never quit.

Tuesday, April 20, 2010

Terrific Tuesdays

Tuesday is my day off at work and the day I have to go to the "Big City" for supervision.  It is the day I take an hour or two to play. Today I am taking more. I have massage scheduled for 11 am. I'll run home and eat lunch. I am trying to eat healthy and exercise. What I have at home is more nutritious then what I would eat if I ate out. Then I will head out and do some shopping, a couple of errands and stop at a coffee shop to read and relax. 

Take time for yourself. It is not selfish.  Our body, soul and spirit need time to rejuvenate.  Jesus went to the garden to be alone and pray. You will have the energy and stamina to parent your child with RAD lovingly if you are not burned out yourself.

Have a healing day for you.

Sunday, April 18, 2010

Tomorrow

The neurofeedback equipment arrives tomorrow. My heart is all aflutter. I'll keep you posted! I am optimistic about this.

Saturday, April 17, 2010

Residential Treatment Facilities

The Parent Email chain that runs through the ATTACH membership has been chatting about residential treatment. I do not know about any of these facilities personally so can not give a thumbs up but they are recommended by other parents of kids with RAD.  Do your research carefully.

CALO is an attachment based residential treatment facility in Ozark, MO. They take kids from ages 13-18.

Villa Santa Maria also specializes in attachment disorder. It is in the Sandia Mountains outside of Albuquerque, New Mexico.  They accepts children from ages 5-14.

Chaddock in Quincy IL treats many behavioral issues but also has a department dealing with attachment and trauma issues.  They take children between 8-16 for the attachment program.

There may be others of which I am not aware. Please share if you know of residential treatment specializing in attachment.  Like I said, these are not personal endorcements by me because I have only heard from other parents and looked through the websites but I think they are worth reviewing more carefully if you are in need.

These are the times I think residential is appropriate:

When the other children,yourself, or the traumatized child (by self injury) are in danger.
When you have tried attachment therapy, EMDR therapy and the therapists let you know that this is more severe than the treatment they give can help.

When respite is appropriate:

When you are burned out.
When you feel you cannot go on.
In order to keep from getting burned out, respite for an evening or weekend regularly can be a big plus!

During those times I think therapy for yourself can help, especially if you are dealing with trauma from your own past.  Makes sure you care for yourself. You are doing a hard job. If there are no options for residential and that is what you believe is appropriate check on a foster parent list (from social services) for those who do respite and take it when you need it.  That may be what gets you through.

Never, never, never quit.....but don't do nothing....be proactive....parent on purpose.

Friday, April 16, 2010

The Russian Adoption News Story

The adoption world is abuzz with talk about the child who was sent back to Russia. The details of what all went on in the home are still being investigated.  Here are my thoughts on it.  RAD is so hard. There have been times I have regretted adopting.(those times are fleeting!) There have been times I have searched for a residential placement. I believe that there are times when disruption of an adoption is appropriate.  It is never appropriate to abandon a child.  ATTACH has issued a statement

"Support for Adoptive Families


The Association for Treatment and Training in the Attachment of Children (ATTACh)

advocates for improved treatment services for children who have experienced significant

traumas early in life that affect their attachment to a parent. Nationally based, ATTACH

is a unique organization comprised of mental health therapists, parents, child welfare

professionals and other child advocates.

Sadly, many parents throughout the world lack the resources and ability to provide the

safe, nurturing environment needed by all children during infancy and childhood to

promote normal development. As a result, their foundation for healthy development is

damaged so that they have difficulty forming loving, lasting, close relationships. These

children can suffer from insecurity in their attachment relationships, and, in the most

severe cases, from disturbances and disorders of attachment. Parents, teachers, and others

in helping roles can find that children with this condition are less responsive to direction,

less eager to please and more aggressive. These children may be at increased risk for

serious psychological problems in adolescence and adulthood.

Families who adopt children through international adoption or the foster care system often

need a great deal of information, education, support and services to help maintain the

placement or help families make good choices for treatment or alternative care.

ATTACh is a source of publications, education and support as well as a referral service to

clinicians knowledgeable of attachment and trauma-focused therapy. Proper diagnosis,

treatment and support will help change the future for these children, their families - and our

society."

My interpretation of this is that we, as adoptive families, are here to support one another and encourage each other. If anything this sad story should spur us on to educate and reach out.  Yes. We as moms need support. We need to find it out but I think we also have a responsibility to reach out to other families as well.

Have a healing day!

Tuesday, April 13, 2010

RADical move

Thanks for all the kind words and encouragement! I appreciate them more than I can say!  I am sitting in Panera Bread working on changing the addresses on my magazine subscriptions. I have a mug of coffee and a strawberry scone.  These times to myself are vital to my mental/emotional health. I savor every second.  The weather has been gorgeous in Nebraska and I'm back to walking outside every day which also rejuvenates me, plus will be good for helping me lose my winter weight. Doggone that winter weight. 

We have everything set up to work with Neurocore as soon as the equipment arrives and we install our information.  I'm excited to see how it works. Teddy is actually pretty happy about it too. It is a way to change how his brain works without  talking through his feelings, past, future, etc any further. We have talked them to pieces and he can't/won't let go.  We'll see what this does. I have a good feeling about it!

We are in the most difficult stretch of the move. This is when we begin to say goodbye. We have already started saying goodbye to the professionals we have worked with for 17 years, dentists, doctors, car guy....yes. our car guy.  I went in to get my oil changed one day and there is our car guy and his wife waiting for me. They took me out for lunch while the other car guy changed my oil. Show me that in a big city!!

My internship here has been valuable as far as experience working in the future as a mental health counselor. It has also been great for giving me a better understanding of my kids with RAD.  A child with RAD cannot "behave" any more than someone with Bipolar can stop having mood swings. It is a serious mental disorder. The brain has been changed.  We don't need to love them more....we need to love them differently. I know many of you do not have access to attachment therapists, emdr therapists, or neurofeedback where you live.  Read, read, read. There is some great material out there that can make such a difference.

http://www.attach.org/ has a list of the most up to date resources.

Never, never, never, quit. And go have a cup of coffee and a scone. You need TLC too.

Monday, April 12, 2010

What is going on RADalately.

We have 5 weeks until we move. Our house is not sold but we have 2 people with strong interest.  I'm hoping for at least one offer this week. Hope. Hope. Hope. Where would we be without hope?

Teddy is going through a strong pull away period. No violence, no aggresion but pulling away. He will not help with the house. If asked he glares and says "I don't know how." He was watching a lot of violence on tv and refused to shut it off. One day I picked up the tv and carried it out, but the house for sale I felt it needed to be in its spot.  So I hid the remote. We have satellite so the channels won't change without the remote. His language is vile at times. It is directed at me and Taz.

As sand through the hour glass, so are the days of our lives, or something like that. Anyway, yes, we are moving forward with our move and walking the tight rope with Teddy. Taz seems to be doing pretty well. His ADHD type symptoms cause him a lot of social problems but even that has improved a little.  Baby steps are still steps forward!

We are working on getting the neurofeedback set up for Teddy. My husband and I discussed it yesterday over sundaes at Dairy Queen.  The goal is different for different kids. We hope to get Teddy's ADHD improved to the point of him being able to hold down a job. He graduates next year! His future looms before us as a sea of uncertainty. We will work it out. He cannot live at home as an adult. He is verbally abusive toward us and refuses to help out or comply with any directions. 

RAD is a difficult disorder. It is so hard for our kids. So hard for us. But we keep going. It is what we do.

Friday, April 9, 2010

Neurofeedback


We are in the process of setting up Neurofeedback with Neurocore .  Their program is unique in that it is a company that will work with the parents in their own home.  We pay a deposit, receive a contract, get trained on line, they ship a laptop, EKG equipment, software and then work with us online to do the Neurofeedback.  Since we would have to drive an hour each way to do Neuroffeedback in an office it works great for us. I will let you know how it goes.

This site has the best explanation of Neurofeedback I could find.

Never, never quit. Our children have suffered through trauma that changed the way their brains work. They cannot heal themselves. They cannot try harder. They cannot "stop it".  They cannot be bribed, rewarded, or begged into behaving better. Their brains are wired differently. Rewiring through trauma or attachment therapy, EMDR therapy, Neurofeedback and or other trauma type therapies can help if the person is trained to work with traumatized children. 

While I am thinking of it, perhaps because this is my day off, TAKE CARE OF YOURSELF. Care for the caregiver. Take a walk on a warm spring day, plant some flowers, go for a cup of coffee, go shopping, exercise, eat nutritious meals, breath deeply and spend time in prayer. Restore.

Wednesday, April 7, 2010

Bilateral Stimulation


Bilateral stimulation is used in EMDR therapy and in some Occupational therapy.  I am going to leave some sites if you'd like more information. My "mom" definition is that it is an activity that stimulates both sides of the brain helping to calm the brain. 

http://www.emdrinaction.com/store/equipment -the above equipment plus some info

http://nejm.highwire.org/cgi/content/abstract/349/20/1925 - the abstract of a study on bilateral stimulation

http://www.emotionaltuning.com/gpage6.html - What is bilateral stimulation








Sunday, April 4, 2010

Sensory Integration Dysfunction

In an evaluation done by a Neuropschologist a couple of years ago Teddy was diagnosed with Sensory Integration Dysfunction (SID) also called Sensory Processing Disorder (SPD).  A great book on this is "The Out of Sync Child" . The link is to the Out of Sync website which leads to the book. 

Here are red flags your child may have SPD according to the SPD Foundation
If more than a few of the symptoms listed below fit your child, refer to the complete SPD Checklist in Our Library. For a Spanish-language copy of the Red Flags, click here.

Infants and toddlers

____ Problems eating or sleeping

____ Refuses to go to anyone but me

____ Irritable when being dressed; uncomfortable in clothes

____ Rarely plays with toys

____ Resists cuddling, arches away when held

____ Cannot calm self

____ Floppy or stiff body, motor delays

Pre-schoolers

____ Over-sensitive to touch, noises, smells, other people

____ Difficulty making friends

____ Difficulty dressing, eating, sleeping, and/or toilet training

____ Clumsy; poor motor skills; weak

____ In constant motion; in everyone else's face and space

____ Frequent or long temper tantrums


Grade schoolers

___ Over-sensitive to touch, noise, smells, other people

___ Easily distracted, fidgety, craves movement; aggressive

___ Easily overwhelmed

___ Difficulty with handwriting or motor activities

___ Difficulty making friends

___ Unaware of pain and/or other people

Adolescents and adults

___ Over-sensitive to touch, noise, smells, and other people

___ Poor self-esteem; afraid of failing at new tasks

___ Lethargic and slow

___ Always on the go; impulsive; distractible

___ Leaves tasks uncompleted

___ Clumsy, slow, poor motor skills or handwriting

___ Difficulty staying focused

___ Difficulty staying focused at work and in meetings

You can see why your child needs a full evaluation by a professional in order to have an accurate diagnosis. Medicaid did pay for our child's neuro psych evaluation. It did have to be preapproved. Teddy had an intake assessment by the neuropsychologist and then her recommendations for a full evaluation were given to Medicaid. He was approved for 6 1/2 hours of evaluation. I feel this was the most complete evaluation we have ever had done.  We found a neuropsychologist at a rehabilitation center for brain injuries.  A good diagnosis psychologically is as important as a good physical diagnosis for a physical problem. 
 
Never, never never quit.